Patient and Community Educators - Midwest

Who We Are

: Cogent Biosciences is a publicly traded biotechnology company focused on developing novel precision therapies to treat a broad range of patients with unmet medical needs. Cogent’s lead program, bezuclastinib, is designed to selectively and potently inhibit exon 17 mutations found within the KIT receptor tyrosine kinase, including KIT D816V. KIT D816V is responsible for driving a rare and serious condition called Systemic Mastocytosis, and exon 17 mutations are also found in patients with gastrointestinal stromal tumors (GIST), a type of cancer with strong dependence on oncogenic KIT signaling.

Bezuclastinib has exhibited promising initial data across all three trials: APEX in AdvSM, SUMMIT in NonAdvSM and PEAK in GIST, including an encouraging safety profile across 600+ patients in single agent and combination dosing. The Role: The Patient and Community Educator (PACE) serves as a trusted resource for individuals living with Systemic Mastocytosis (SM) and Gastrointestinal Stromal Tumor (GIST) , as well as their caregivers and community members. Reporting to the Director, Patient and Community Educators, this field-based role is responsible for delivering clear, compassionate, and compliant disease and treatment education through live and virtual engagements.

The PACE team will play a critical role in empowering patients and caregivers with knowledge that helps them better understand their condition, navigate their treatment journey, and engage more confidently in conversations with their healthcare teams. This role requires a unique combination of clinical fluency, emotional intelligence, and communication expertise. The ideal candidate is passionate about patient advocacy, skilled at translating complex medical information into accessible language, and motivated by making a meaningful difference in the lives of patients living with rare diseases and cancers.

Responsibilities

: Patient & Caregiver Education Deliver disease state and treatment education to patients, caregivers, and community members in both live and virtual settings. Facilitate educational programs, webinars, 1:1 meetings and small-group discussions designed to increase disease understanding and patient confidence. Translate complex clinical information into clear, relatable, and patient-friendly conversations.

Serve as a compassionate and knowledgeable resource for individuals navigating the challenges of rare diseases and cancers. Community Engagement Build trusted relationships within the SM and GIST patient communities. Support patient advocacy events, educational forums, and community meetings.

Collaborate with advocacy organizations, healthcare organizations, and community stakeholders to expand educational outreach.

Requirements

Coordinate and host patient education events, including virtual webinars and in-person programs. Ensure all educational materials and discussions adhere to regulatory and compliance standards. Patient Insights & Collaboration Capture patient and caregiver insights from field interactions and share them with cross-functional partners.

Collaborate closely with internal teams including Patient Advocacy, Marketing, Sales, and Patient Support Services to ensure alignment. Provide field perspective on patient needs, barriers to care, and community trends. Documentation & Compliance Maintain accurate, timely, and compliant documentation of interactions and program activity within CRM systems.

Ensure strict adherence to privacy regulations and company policies. Represent the organization with professionalism, integrity, and empathy in all interactions.

Qualifications

: Bachelor’s degree required; clinical background (RN, NP, PA, PharmD, MSW, or similar) preferred. 5+ years of experience in patient education, nurse educator roles, patient services, or similar patient-facing roles in pharma/biotech.